Mark Bartlett
Aboriginal Health
Internal Medicine
Landmark Study - Reducing diabetes complications
Arboviruses
Diabetes Guidelines - Practical Points
Drug Treatments in Diabetes - a brief guide
Diabetes - the Glycaemic Index
Pollens in Asthma and Rhinitis
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Last Modified 31/10/98
Mosquito transmitted viruses
Mosquito transmitted viruses, in particular Ross River virus (RRV) and Barmah Forest virus (BFV), cause significant morbidity. Ross River virus infection is the most prevalent vector-borne disease in Australia.1 In the Northern Rivers area alone more than 300 infections of RRV and BFV were reported in 1996.
Each of these infections is notifiable by testing laboratories under the Public Health Act 1991.
Definitive diagnosis is typically made by serologic testing. Because RRV IgM usually persists for several months, and to rule out a false positive IgM result, convalescent sera should be analysed for IgG.2 The acute phase is that period within seven days of the onset of clinical manifestations and the convalescent phase eight to 28 days post onset.3
The incubation period for Barmah Forest is seven to ten days. Diagnostic difficulties are similar to those for RRV.2
Mark Bartlett
2. Mackenzie J. & Smith D. (1996) Mosquito-borne viruses and epidemic polyarthritis. MJA. 164. pp90-93.
3. Mackenzie J., Broom A., Calisher C. et al Diagnosis and Reporting of Arboviral infections in Australia. Communicable Diseases Intelligence. 17(10). pp202-206.
4. Beard J., Trent M., Sam G., & Delpech V. (1997) Self-reported morbidity of Barmah Forest virus infection on the north coast of NSW. MJA. 167. pp525-528.
GPs interested in participating can contact Mark Bartlett on 02 6620 7526.
Research opportunities
The Northern Rivers Institute of Health & Research will be undertaking further research into RRV and BFV over the next 12 months. In particular, the institute will investigate and compare early signs and symptoms, indicators predictive of severity, the longevity of symptoms and the effectiveness of protective practices. The institute is inviting GPs in the Northern Rivers area to assist with recruitment of those potentially infected.
Ross River virus
The incubation period for Ross River virus (RRV) infection varies between three and 21 days, usually seven to nine days.2 Infection is characterised by arthralgia and myalgia, the joints of the extremities most commonly affected. True arthritis occurs in over 40% of those affected. Lethargy, fever and rash are also common. The rash is typically maculopapular and usually involves the trunk or limbs.2 The convalescent period can be prolonged, with significant proportions of those affected reporting arthralgia, myalgia and lethargy several months after onset of symptoms.1, 2
Barmah Forest virus
Barmah Forest virus (BFV) has only recently been shown to cause human disease and serological testing has only been generally available since 1994.4 Consequently little is known about the clinical features of Barmah Forest virus infection. Symptoms of BFV appear similar to those of RRV, however arthritis and arthralgia may be less common and less severe, and rash more common and more prominent.2, 4
Public health officer
Northern Rivers Institute of Health & ResearchReferences
1. Westley-Wise V., Beard J., Sladden T., Dunn T. & Simpson J. (1996) Ross River virus infection on the North coast of NSW. Aust NZ J Pub Health. 20(1). pp 87-92.
Discussion
Support
Optimistic!
barmah forest and what aborigianls had to do with it
polymyalgia rheumatica
Combined RRV & BFV
Mysterious
Kids
Ross River Fever
Ross River Virus
Barmah Forest Virus
Arboviruses
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Support Erin, erinjane@hotmail.com Posted 17/6/2001 8:33 AM Hi I have a friend who has recently been diagnosed with Ross River Virus. I was wandering if anyone who has suffered from it could get back to me on what support they received, from anyone, like clinics, or the government If you could return as soon as possible as I am leaving on Tuesday to Sydney to see her! Thank you Linda Ruffin, LRuffin4@aol.com Posted 24/7/2001 11:05 AM I've been diagnosed with Arbo virus which I picked up in Michigan in june. The doctor didn't know how long it would last. the symptoms vary almost daily...my lymph node in my head stayed enlarged for 2 weeks and is just now diminishing. I'm interested in hearing from others how long they were infected and symptoms. Thanks KELLY GRAY, GRAYFAMILY24@HOTMAIL.COM Posted 2/8/2001 10:03 AM I have been getting recurring bouts of the 'flu', for the past 5 months. My last one started Saturday, and i went back to the doctor on Monday as i was worse. He informed me that i was diagnosed with BFV in February, when they did blood tests. Unfortunately, no one thought to tell me about the results. I was told that there is not much known about BFV, and it can last indefinately, with recurring symptoms. They told me to take Brufen for the body aches, and panadol. I can't take brufen, as it affects my stomach, and panadol, well i may as well have a lolly as it does the same thing. Luckily i am on holidays at the moment, but i have had alot of time off work in the past with it. Any new information would be greatly appreciated. Take Care All Kelly Gray |
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Optimistic! Optimist, vicpolk@tsn.cc Posted 7/6/2001 5:39 PM I was diagnosed with Barmah forest Fever today, and have been reading the items in this discussion group avidly. I am now quite fearful that my symptoms will be as extreme and long lasting as these unfortunate people. All I can hope is that the people who get it mildly don't bother to communicate via this medium. I know several people who have had it very mildly and have had no complications or recurrences. I will let you know if I come across anything to alleviate the symptoms apart from the ones mentioned here. |
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barmah forest and what aborigianls had to do with it ashley, magies_15@hotmail.com Posted 31/5/2001 11:44 AM i need information on the narmah forest about what the aborigials had to do with it i need as much as u can give me |
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polymyalgia rheumatica Valerie, vjmitchell@bigpond.com.au Posted 22/3/2001 10:02 AM I was told 17 years ago that I suffered from the above complaint which seems to have similar symptoms to the BFV and RRF ones which I have just read. I have been treated with Prednisone for the last 17 years. Now I have the polymyalgia under control, but if I were to discontinue taking the Prednisone I wouldn't probably be able to get out of bed because of the pain. It affected my right shoulder, neck, left shoulder, hips etc. in that order. I even needed help to sit and get up from the toilet, get out of bed in the morning. If anyone can please tell me how to discontinue taking Prednisone without the complications of polymyalgia returning I would be extremely grateful. One can only hope!! |
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Combined RRV & BFV Daryl, kcox@hotkey.net.au Posted 5/3/2001 10:30 PM Well thankyou everyone this has been an enlightening. I today have been dignosed as having both Viruses at some time in the past. I beleive it all began approx. 3 years ago when I began to also feel like shit. (like you Philip) It is however a relief to not have been diagnosed with the dreaded 'C' (cancer). It was great to read all your mail to confirm that I am not alone. I would appreciate anyone advised me of any vitamins or drugs, or massage, or what ever, that may give me some relief?
Daryl, kcox@hotkey.net.au Posted 5/3/2001 10:30 PM Well thankyou everyone this has been an enlightening. I today have been dignosed as having both Viruses at some time in the past. I beleive it all began approx. 3 years ago when I began to also feel like shit. (like you Philip) It is however a relief to not have been diagnosed with the dreaded 'C' (cancer). It was great to read all your mail to confirm that I am not alone. I would appreciate anyone advised me of any vitamins or drugs, or massage, or what ever, that may give me some relief?
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Mysterious Grant Ferstat, fotm@iinet.net.au Posted 24/7/2000 12:26 AM About a year ago I went to the doctor with persistent aches and pains in joints particularly my neck and left shoulder. I was initially diagnosed with RRV. Some months down the track further testing supposedly proved this to be a misdiagnosis. I will mention at this point that I was tested for reumatoid factors and many other things all of which came back negative. My doctors at this point decided to treat my problems (which at this stage also included lots of clicking of joints, hip and foot pain) as a series of mechanical problems. I have had many therapies since including physio, chiropractic, orthotics put in my shoes, facet blocker injections in my neck (despite the fact that scans X-rays etc showed only early signs of degeneration between 5th and 6th vertebrae). I have also tried low stress diets, anti inflammatory medication, vitamins etc, etc, etc. I am 35 years of age. My questions are: 1) Are there many incidences of RRV or similar virus being tested positive then negative and then later found to have actually been positive? 2) Is it unusual for RRV symtoms to strongly localised to certain areas within the body? 3) Can joint and muscle aches 'echo' certain mechanical weaknesses within the persons body in the way that say arthritis aches worst in the knee that someone hurt 20 years ago playing sport? I have no doubt that in my case at least some of these mechanical problems do exist within my body, however it has surprised me that I have not responded better to any of the treatments I have received. In the words of my chiropractor 'I'm happy with your adjustments but you just don't seem to stay adjusted' I stiffen up badly after sleep and tend to loosen up during the day as I move around. I am a guitar player and have looked at lots of postural issues in an attempt to try and link my activites with my symtoms. I do not neccessarily feel my condition is aggravated after playing-sometimes yes, sometimes no. At times though even after a week of not playing I will be too uncomfortable to contemplate playing guitar. Can anyone shed any light on any of this? Penny, pitstop_101@hotmail.com Posted 7/12/2000 9:56 PM I have had the polyarthralgia, myalgia, fatigue etc for nearly a month. I have tested negative twicw for RRV and the usual stuff. Where do I go from here. Should I ask for a BFV test? How long did it take for others to be diagnosed? Thanks Penny Kim, caag@optusnet.com.au Posted 11/5/2001 10:40 PM Mid January I sat on the lounge and could not get off it. I has 2 weeks off work. I could hardly walk less alone wash or brush my hair etc. Nearly 4 months later, four negative blood test later! 1 Bone Scan later! I still have swollen wrists, knees and ankles. I take 2 Celebrex 200mg a day and at least 6 Panadeine. I sleep most of my weekends away, when possible. Like Grant, no Doctor can give me a answer. I have been trying Chiropractic with Acupunture it relieves the tension more than anything!!! Maybe one day a Doctor might read some of these messages and find a answer to our problems. Best of luck everyone!!!!!!!!!!!!!!!! Kim Kim, caag@optusnet.com.au Posted 11/5/2001 10:40 PM Mid January I sat on the lounge and could not get off it. I has 2 weeks off work. I could hardly walk less alone wash or brush my hair etc. Nearly 4 months later, four negative blood test later! 1 Bone Scan later! I still have swollen wrists, knees and ankles. I take 2 Celebrex 200mg a day and at least 6 Panadeine. I sleep most of my weekends away, when possible. Like Grant, no Doctor can give me a answer. I have been trying Chiropractic with Acupunture it relieves the tension more than anything!!! Maybe one day a Doctor might read some of these messages and find a answer to our problems. Best of luck everyone!!!!!!!!!!!!!!!! Kim |
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Kids Connie, jatibro@hotmail.com.au Posted 25/6/00 10:32 PM Hi... I would like to know if children can get RR or BF as my 9yo developed a rash on October 3rd 1999 and blood tests showed it was micoplasma infection then after a few weeks another test showed it was clear... She still has the rash and after seeing 4 doctors not one will test for RR or BF as each said kids cant get it..We also saw a specialist and he said to put her feet and hands in cool water to relieve the symptoms.Has anyone got any ideas.. I am going to another doc this week and will be demanding a test but if you can help now please do..thanks.. |
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Ross River Fever Sonia, novustab@fastinternet.net.au Posted 18/3/00 3:15 PM Can anyone help with a treatment that works for ongoing ross river fever? I have had it for 3 years & am suffering a re-occurrence. Anti inflammatories & Vitamin B cytomen injections do not seem to be helping. In particular I have swollen painful joints and severe fatigue. Posted 18/3/2000 Anne, anne@madderty-st-davids.freeserve.co.uk Posted 6/4/00 9:41 PM Do you think I might have RRV or another Australasian virus? I visited NSW (Sydnsy and Armidale), North Island NZ and Singapore in February 1997. Over the next few months I had various episodes of shifting polyarthralgia, dizzyness and flu-like symptoms. I developed a heart arrhythmia (Ventricular bigemini), and have been off work since then with fatigue & lethargy. Any advice as to what I might get tested for? My Aussie visit was work-related, and a diagnosis might influence my financial future. Any help would be gratefully received. Sandy Robertson, sandrar@tpg.com.au Posted 14/7/2000 10:49 AM I had a blood test two years ago and the result stated 'I had been exposed to Ross River Virus'. Does this mean I actually had Ross River? I occasionally have days where I feel nauseous and tired and my knees and hips ache. This happens every few months and I often wonder if this is the virus or just 'old age'. I am 50 years old.
Maree Lane, mareelane@hotmail.com Posted 25/10/2000 11:45 AM I was diagnosed with RRV over 2 years ago and suffered with poly arthritis for about 8 months then it miraculously disappeared. But for the past 2 months I have been experiencing the same hand and feet pain again. My doctor says RRV usually disappears within 12 monthsand the literature does not indicate that it comes back. I have heard many people talk about relapses. Is there any literature on this ? Does anyone know about the progress of the diseases? Shelley, shellkel@iprimus.com.au Posted 15/12/2000 9:38 AM I was diagnosed with Ross River about 3 years ago and became very ill initially, after a couple of months I recovered but still till this day, don't ever feel 100%. I suffer pain in my joints, mainly wrists and hands, also ankles. I have visited the doc several times over this period with this and also other ailments, chronic fatigue and depression, from ongoing illness. It is apparent that a percentage of people with Ross River Virus can go on to have Rhematoid Arthritis, which in my case I can relate the symptoms to at least. I've tried grabbing an eletric fence and god knows what else. The only thing I found to be of any help at this stage is a Natural Product called cats claw available at pharmacy's. If anyone else has any cures or helpful hints, please let me know. The frustration as others know is unbelievable. Amie, aimster01@hotmail.com Posted 28/3/2001 12:10 PM Hi I contracted RRV in '93 after holidaying in Yarrawonga. I have been suffering from the side affects ever since. I have been to many specialists & they all put it to hypochondriac or being mentally unbalanced due to being ill once. It's gotten to the point that I can barely stand eating foods without breaking out in painful joints & muscles. I seem to have trouble with anything with salicylates among other things. Every test that could possibly be done on a person has been done on me & they all come back as healthy with a positive reading of ONCE HAVING RRV. I do become depressed at times & will be attending therapy to find out how to deal with this problem. It's sooooo frustrating when no one believes that you are ill & put it down as looking for attention. I used to be a very active person, now I'm on disability benefits & stuck mooching around the place. If there is some sort of tests to help me sith my chemical unbalancing PLEASE help me. Thanks for your time Amie X mike, macfire@bigpond.net.au Posted 24/5/2001 2:34 PM my partner has been finally diagnosed after a previuos misdiagnosos of having RRF.A very active 42 yo female has been reduced to a debilitated depressed wreck.We have discovered a combination of aloe vera , antioxidant tablets and energy vitamins and minerals to be helping greatly with the fatigue however it is very expensive to maintain month after month.She has been prescribed celebrex for the arthritis and then a week later told by the gps colleague to stop taking them as it is symptoms caused by RRF npt true arthritis ?? any good ideas apart from hangin off an electric fence would be appreciated Kay, kaymabbott@bigpond.com Posted 1/7/2001 10:06 PM I was diagnosed with RRV about 8 years ago, was told it would go away in about a year, but never did. I had bouts every year sometimes they were worse than others. I went to a herbalist and he put me on a course of 'ASTRAGULAS 8' and 'PROMUNE Bioactivator' tablets. Took them from November last year till beginning of June this year. I now have much more energy and strength to what I have had. Don't know if this would help everyone but it was worth a try. Regards Kay |
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Ross River Virus Kitty Bacso, kittycat@uswest.net Posted 31/12/99 2:25 PM I think I had Ross River Virus 10 years ago after a visit to Australia. No one in the States could diagnois me. After reading up on the disease I find that I had all the symptoms and ever since, have been experiencing all the muscular and joint problems. Is there a way, a test perhaps that can confirm this or is it too late? Dianne Osborne, osborne10@ozemail.com.au Posted 21/9/2000 11:23 PM I was tested positive of RRV approximately 6 months ago, at the time I was also diagnosed as recently having had glandular fever, My symptoms include painful joints, muscle cramping and muscle pain, painful tendons, tiredness, fatigue and depression, the depression I am sure is due continuation of the symptoms, I have also found that as these symptoms cant be seen they cant be that bad, I have been told to get over it and to my disapointment have been abandond by my 'friends' as I am now boring, because I dont feel up to active socialising. I am 42 years of age, live in WA and work full time, (with great difficulty). Any advise or even just support would be gratefully received. Thanks, Dianne Karl Badstuebner, odyssey@wn.com.au Posted 30/9/2000 12:08 AM Having just been diagnoised with Ross River Virus i am quite dismayed at the lack of knowledge about the symptoms and effects of this Virus by the medical faternity. I have been told by my doctor that it will soon pass and will unlikely effect me in the future. I have friends who suffer from this virus and have been effected by it continiously for the last five years. Is this virus and its effects being given a low priority so as not to alarm visitors. As a tour guide i am aware of the campaigns to get people to take precautions against being bitten, but no one talks about the effects of being infected. If anyone feels like forming a electronic support group and possibly a lobby group please e-mail me. Jean Gronow, quenya@wn.com.au Posted 11/1/2001 2:54 AM My father has been suffering RRV for about seven years and has severe 'attacks' every six months or so. His symptoms include: aching joints, muscle fatigue, headaches, dizziness, nausea, spasms, major lethargy and generally feeling quite ill with it. Has ANYBODY out there heard of any kind of cure or even just a clue to help ease his pain? We are all very worried about him and would be extremely grateful to anybody who can help. KM, poet1920@aol.com Posted 21/3/2001 5:10 PM Contracted in Moreton Bay salt water marsh area at high tides in rainy season (stupid to walk at all in that area at that time but I now live in the States and was not aware enough) Incubation around 10 days. Severe 3-day headache followed by swollen face (anyone else have this?), sore eyes, burgundy blotchy torso and groin rash, severe arthralgia, face, palm and finger skin peeling , numb fingertips, severe inflammation of all previously midly arthritic joints. Symptoms abated and then returned within 3 weeks. It's now 10 weeks later and arthralgia is bad--hips, elbows, KNEES, feet, S-I joint. Now on Celebrex 200 mg 2 X day for symptom relief. Am hypermobile naturally and this has made all joints unstable. Forcing myself to do stationery bike for 30 minutes a day, walk for 30 minutes a day, water aerobics 30 minutes 2 X week. No one even knows what it is here in the USA. They think I'm exotic....:). Taking antivirals from my acupuncturist. Also echinacea and deodorized garlic. Who knows if they help but they can't hurt. The celebrex eases the pain and let's me exercise and move. Any bright ideas anyone with a similar pattern of symptoms? Especially the swollen face and skin peeling. JM. Sharon-Maree Cole, cole@kin.net.au Posted 24/3/2001 5:38 PM Hello, I have just been told i have Ross River Virus. I live on Kangaroo Island and don't have access to good alternative health. I have joint pain and feel very tired alot of the time. Can anyone help out with some alternative medicine. Has anyone done the Liver cleansing diet trying to clean out the system?. Any information would be good. Thanks Sharon-Maree pauline, theschein6@hotmail.com Posted 2/5/2001 7:26 PM after a very painful 4 days i was diagnosed with rrv.I am waiting on test results but my empathic Dr (herself a past victim) seems quite sure of her diagnosis.I am a full time teacher,currently on sick leave and also have four children of my own to care for so any ideas or suggestions on relief medications would be really appreciated.I am on celebrex twice daily and this does give some relief but the athritic pain is always there.I must admit I was unaware of the seriousness of the virus.Thanks |
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Barmah Forest Virus , mevans@nrg.com.au Posted 19/5/99 11:49 AM I too have Barmah Forest Virus. I am a full-time teacher and am presently on sick leave due to the symptoms I am experiencing. My doctor has me on Indocid and Pandadol for joint imflammation and pain management - non of which helps - yet. I have had the virus for a period of 12 months, with no relief in site - YET! What is the prognosis of this virus? Is there anything that can be done other than the above to relieve the symptoms. I'd love to hear. Regards Deb Lesley Bluett, lbluett@acay.com.au Posted 21/8/99 12:08 PM Hi, would like more information about BFV, particularly symptoms. Many thanks Mark Ambrose, ambrosel@ozemail.com.au Posted 7/3/00 6:48 PM I originaly contracted BFV a couple of years ago. The symptoms of fatigue and arthritic type pain were extremely debilitating, particularly as I was working and studying full-time. The symptoms lasted for about 18 months and also contributed to a bout of major depression. Recently, after returning from a few months in Nepal, the virus has become active again (my Doctor believes that this is more likely than a new infection). Needless to say, I'm not looking forward to the next few months as I had specificaly moved back to Darwin (from Alice Springs) to undertake a master's degree. As far as management of BFV is concerned, the only thing I found useful is to get plenty of rest and try and structure your schedule around the times when you you feel most fatigued, for me this is usualy around mid-afternoon. If any one would like to contact me regarding BFV, please feel free to do so. JOHN SYKES, SYKESY@LISP.COM.AU Posted 28/3/00 8:55 PM My son Matthew has just been diagnosed --he has recently moved to Darwin--do you have any advice or information that would help him understanding his recovery period--thanks--JOH SYKES Ross Morden, rostifer@powerup.com.au Posted 31/3/00 6:46 AM My mother has recently been told she has Barmah Forest Virus. I am finding it very hard to obtain copy of any discussion or tried remedy to this virus. Please point me in a good direction for discussion boards or text regarding this virus. Many thanks. Alanna, Alanna.Mastrippolito@jcu.edu.au Posted 8/5/00 11:17 PM Hi! Rececently I was diagnosed with Barmah Forest and would like to know a little more about the virus. I would like to know if there is anything that can be taken ie vitamins or any physical exercises that may increase my stamina as it is getting all too much to handle. Any info at all about this virus is much appreciated. Thanks Mick, mick@hishome.com.au Posted 10/8/2000 5:19 PM G'day I have just been diagnosed with Barmah Forest Virus after spending 8 weeks off work already . thank you Mick Phillip, jreymer@wn.com.au Posted 2/9/2000 12:36 AM I am a 48 yesar old male who has contracted BFV & RRV twice. Symptoms have been stiff joints, swollen tendons, headaches and general fatigue. Some days I feel like shit!!!! Usually cold days. Does anyone have any natural remedees rather than rest or anything chemical/medical or illegal substances. ie. aromatherapy,massage or any other treatment would be appreciated. Fran Martin, jfmartin@nru.com.au Posted 7/9/2000 1:30 AM Hi, I was wondering if many people have been diagnosed with both RRV and BFV as I have been. I have suffured with all the usual symptoms for the past four years. It was probably about August when I first noticed the symptoms but took until January the following year to be diagnosed as I was visiting the doctor for the individual problems that come with these viruses and not looking at the big picture. It is now four years down the track and it is back. I seem to have a reacurrance every August/September through until May. What I am trying to find out is if having both viruses at the same time would make the recovery process longer and would that explain why the symptoms don't appear to have eased or is it just a case of 'each individual is diferent' (in regards to recovery)? Fran ROSEANNE LA RIVA, cptforce@ultra.net.au Posted 17/9/2000 9:06 PM My Dad was diagnosed with barmah forest virus in April this year. As he had undergone by pass surgery in January he thought he was feeling unwell as a result of his heart surgery. He still has days where he feels unwell and we would appreciate any information or where we can find some information on this virus. Many thanks, Simone Harris, harrishouse@ozemail.com.au Posted 22/9/2000 11:40 PM Hi everyone! My neighbour has been diagnosed with Barmah Virus in Perth, Western Australia. She is very keen to speak to any other sufferers particularly in W.A. I am also trying to find out any info about where it has been reported in W.A. I have found quite a bit of useful info about the virus from fact sheets from www.health.qld.gov.au. Thanks Simone marcus liew, scream@nor.com.au Posted 17/10/2000 8:27 PM I have been diagnosed with BFV and have the common symtems mentioned above. It has also affected my breathing, balance and hand eye co-ordination. Sometimes my senses are hallucinate (E.g my hands go Ice Cold and my senses of touch and smell are hightened ). Are these symptoms associated with BFV ? Paul Russell, motlycru@granite.net.au Posted 9/11/2000 8:47 PM I was diagnosed with BFV in 1997 and have since had it reoccur 3 times leaving my life now for the last 3 years a living hell.Any current information would be very helpful to myself and my very much in the dark GP...It seems that after 3 years still no one can tell me what else to expect from this devistating lifestyle invading virus... Regards Paul Hilary, hjs303@one.net.au Posted 28/11/2000 8:57 PM I am a GP trying to find information for a patient (my first) whose tests have just come back positive for barmah forest virus. It has been very interesting reading other peoples experiences, particularly that the disease can be recurrent. Thanks for the advice on prednisone, Pamela. Lisa Carpenter, lcarpe20@scu.edu.au Posted 12/2/2001 10:36 PM i have recently been diagnosed with BFV(last week). my worst symptoms is arthritic type pains in my joints especially knees and feet and fatigue. i am interested in knowing how many other sufferers, if any, have passed the virus on to other members of their families? i know they say it can't be passed to children but is there any statistics to support this belief!!! and what of partners. i feel i can live with the suffering but would never forgive myself for putting someone else through this. Is the only way to avoid passing it on living in the haze of insect repellent!!!!! Dorothy Dowling, dorothyd@iprimus.com.au Posted 26/2/2001 9:05 PM Yup - another one - After coming back from holidays in Byron Bay - I became so sick I really thought I was going to die. I could not move my head and could not drag myself from the couch to the bathroom. I am 42 years of age and have always led an active life up until now. Blood tests revealed BFV. Considering myself someone with a strong constitution I battled on with the fatique but 6 months down the track I am floored. I feel like I am living in a shell of a body. I find my legs wont hardly hold me up anymore. Sometimes my body co-ordination is so weak and bad I behave like a drunken person. There seems to be a few of us out there - God bless you all - I hope that your suffering does not last and that you all can resume happy and healthy lives once again. If anyone can email me with some recommendation in terms of herbs, vitamins or alternate healing methods to help me to keep going - I would very much appreciate it. Eliza, eliza_nsw@hotmail.com Posted 20/3/2001 12:49 PM Hi I was diagnosed with BFV last Aug. I was always coming against closed doors and found it very hard to cope, but not with the virus as such but with the lack of knowledge in the medical world. I was sent to a neurologist because it effected my brain, I seen other specialists and only ended up more 'broke' then when it started, and none the wiser in regard to having an educated understanding of the virus. BUT I then seen a professor who see's special or diffucult cases - me, and have since been given brochures on Chronic Fatigue and after I argued and disagreed I had to agree because I fit into this criteria the BFV has left me with Chronic Fatigue, sore lymph nodes, bad muscle pains, fevers, rashes and alot more, so pls get checked out for the complicaitons of these viruses more than the viurs itself, it does the damage, then leaves. Find a good broard minded doctor, I have seen speicalits who had never heard of BFV they admitted to that, but then refered me along and yes I found GO Eliza Eliza, eliza_nsw@hotmail.com Posted 20/3/2001 11:33 AM Hi I was diagnosed with BFV last Aug. I was always coming against closed doors and found it very hard to cope, but not with the virus as such but with the lack of knowledge in the medical world. I was sent to a neurologist because it effected my brain, I seen other specialists and only ended up more 'broke' then when it started, and none the wiser in regard to having an educated understanding of the virus. BUT I then seen a professor who see's special or diffucult cases - me, and have since been given brochures on Chronic Fatigue and after I argued and disagreed I had to agree because I fit into this criteria the BFV has left me with Chronic Fatigue, sore lymph nodes, bad muscle pains, fevers, rashes and alot more, so pls get checked out for the complicaitons of these viruses more than the viurs itself, it does the damage, then leaves. Find a good broard minded doctor, I have seen speicalits who had never heard of BFV they admitted to that, but then refered me along and yes I found GO Eliza Tracey , twoods@vtown.com.au Posted 23/3/2001 9:15 PM Thanks to all above for the info I was diagnosed March 2001 with BFV my doctors first. So at the moment we're flying blind.The fatigue is terrible but the aches in my joints and in the bones themselves are just as bad.Thanks to Simone Harris for the links,I hope to get some useful info from there. I must say the symptoms are all very debilitating in particular the rash which gets so bad that you just dont leave the house.This makes working hard.Well good luck to all,anyone with more up to date info please concact me at the above email address Tracey Jennifer Lowe, jaylo@lagunacom.com.au Posted 1/4/2001 9:47 AM In 1992 my husband was diagnosed with BFV. We were living in Nhulunbuy NT at the time , where, I believe the first cases of human infection were diagnosed. There was no official cure but it was suggested that an unofficial cure was to take Dolomite tablets. We tried this and my husband experienced tremendous relief . So if nothing else is working I suggest you try DOLOMITE . They can be obtained over the counter at the chemist. Good luck. Carol , maggs@shoalnet.com.au Posted 19/5/2001 10:10 PM My son has been ill for 7 weeks with possible osteomylitis(bone infection)but blood tests showed he has had BFV at some stage. He has just turned 12 years old. He has had severe headaches,joint aches, temperatures,and feeling weak, he can't walk far without feeling like his legs won't take him any futher.He has improved but still has pain constantly in one knee and doesn't feel he can walk far, still gets tired.What is the rash like that goes with BFV? We know he was attacked by mosquitoes about March this year.I feel helpless when he is in pain all the time. I don't know much about BFV.Any help would be appreciated. Tracey Woods, twoods3@vtown.com.au Posted 19/5/2001 8:57 PM Hi all have just been told about something to try its called collodial silver you get it from health food shops and/or suppliers and is priced from about $15.00 a bottle its supposed to be very affective i'm going to give it a try I'll let you know if it does me any good Megan Warnock, warnocme@sscc.nsw.gov.au Posted 22/5/2001 9:24 AM My dad was diagnosed early this week with Bahmah Forest Virus, he had experienced a constant headache for over 10 days which prompted him to see his GP. He returned to his GP yesterday as he was experiencing a lot of confusion, he discovered that he was unable to make simple calculations and I think he had problems with some language. This is going to prevent him from working as a pharmacist. Yesterday the doctor diagnosed that in addition to the Bahmah River Virus he has also suffered a minor stroke. He is going to have a CAT Scan today to determine exactly what is going on. He had a TIA 17 Years ago. What I am wondering is: 1. Could his confusion and inability to make mathematical calculations and difficulty with some language be direct symptons of BFV, and although it presents as a stroke could it be a symtptom of BFV? 2. If the CAT Scan reveals that it is a stroke, could this be as a result of having BFV? 3. Is the stroke and BFV unrelated and coincidental? If anyone has any information please contact me. Thanks, Megan. jacqui, thurlow@iprimus.com.au Posted 4/6/2001 2:12 PM Hi, I have recently been diagnosed with Bfv. I am struggling for energy and have always been a fit, active person. The weakness in my legs is the worse part! Is there anything that helps? Regards Paul Russell, motlycru@granite.net.au Posted 3/6/2001 12:35 AM It's interesting to note that Eliza has developed Chronic Fatigue from BFV. After originally being diagnosed in 1997 with BFV (see my email from Nov 2000) my GP semi-diagnosed Chronic Fatigue Syndrome and referred me to a specialist in Feb 2001 for confirmation. This specialist has confirmed my GP's suspicions and believes the BFV was a 'trigger' that over time has become Chronic Fatigue. So much for the original doctors (1997) statement 'It will only last a couple of months and you'll be fine'. After having several periods of poor health and in between not ever feeling 100% I have now been of work for 6 months. Other than some relief from the joint pain (Celebrex 200mg x 2 daily) I suffer many of the typical Chronic Fatigue symptoms (constant tiredness,lack of energy,joint pain,muscle aches and weakness,lack of concentration,short term memory loss,headaches,sensitive to touch and bruise easily,mood swings,short temper,irritable bowel,sleep disorder that ranges from wanting to Paul Philippa Hall, pbhall@tpg.com.au Posted 3/7/2001 6:58 PM It has just been confirmed i have contracted barmah forest virus. Initially it was thought I had only parvo virus. But blood test have no confirmed BFV. I am repeatedly told by my GP the Epidemic Polyarthitis symptoms I am having will indeed pass after about a month or so. tracey wods, twoods3@vtown.com.au Posted 4/8/2001 9:20 AM Hi all, First let me appoligise to anyone who sent me an email our computer went down and we were unable to retrive any thing I know someone sent me an email but I dont know who, so let me say this I have been unable to try the collodial silver as yet being a mum you are the last on the list and having had to cut back my hours at work means money is tight all the time but if anyone has tried it let me know. YES I still have BFV and its not getting better by its self and it dosn't seem to take much for it to flare up. Keep your spirits up. Tracey Di Henshaw, aquedh@turboweb.net.au Posted 3/8/2001 10:00 PM BFV appeared after my ankle was sucked by a leach, and painful swelling and rash appeared on the right leg above the area. It is highly possible I was bitten on the same ankle around the same time by a mosquito, but the co-incidence is rather interesting. Of course, my favourite times in the garden are near daybreak and dusk. I obviously ignored warnings about repellants. Three months on, I am still very weak in the arms with arthritic pain, wake up fatigued after 10-11 hours sleep, get fatigued very easily (school teacher). Temperature shoots up erratically and get prickly heat/ nerve reactions easily).Garlic, ACE, Executive B's, Echinacea have been useful. |
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Arboviruses Helen, 2ndbase@accessin.com.au Posted 18/5/99 2:43 PM Hello, I have just been diagnosed with barmah forest virus and don't know very much about it. I can't seem to find any information regarding this virus.Would you please be able to tell me more about it or at least let me know where I can obtain information about this virus. Thankyou, Fran Cockburn, fcockbur@parks.vic.gov.au Posted 3/9/99 1:28 PM My husband had a bout of Ross River virus approx 7 years ago which was quite severe. Worsening over a period of 3 years have been chronic joint problems, similar to arthritis, particularly in his ankles, rotor cuff problems, shifting almost daily to opposite shoulder, inability at times to even make a fist, fatigue, such that he will come home and sleep away his lunch time. Any clues if these are common symptoms of Ross River post infection??
Pamela Kerr, pamkerr@szptt.net.cn Posted 20/10/2000 7:33 PM My correct e-mail address is as above. Pamela Kerr, pamkerr@szptt.net.com Posted 20/10/2000 7:29 PM I contacted one of these nasty viruses here in Shenzhen China some months ago. I had all sorts of blood tests (because I am functionally illiterate here in China I had no hope of knowing what the results were) and was prescribed anti-inflammatories and pain killers, none of which worked. It started as a pain in the neck, then quickly moved around my body, attacking my 'weak points' ie various joints in which I had suffered tennis elbow and similar. No sooner had my right hand gone out, than my left. Then my left knee, in which a few months previously I'd had a problem became painful, followed by my right knee. Before long every joint in my body was dreadfully painful, and I completely locked up at night. Even the top of my head and the bottoms of my feet were effected, not a pain, but a strange feeling. I also had a sore throat. I skittled back to Australia, where I had (probably the same) tests and the Dr. diagnosed that I probably had one of these viruses. The anti-inflammatories were not working, I could hardly move and was generally in a bad state. He prescribed steroids, (Prednisone), a high dosage for three days, then lower for another week or so. It was miraculous - it took about twenty minutes to get relief. Then it was a few weeks before I was rid of most of the strange symptoms, and the various hot spots which came and went with no rhyme or reason. Now I'm back in China and still suffering from some of these annoying things, for instance, the soles of my feet tingle, and a hot spot on my left shoulder still aches. Just today, I'm feeling I now keep plenty of mosquito repellent. Pamela Kerr |
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